Annual General Meeting of Parkinson's WA - Wednesday 20 October 6pm

The AGM is an opportunity for you to hear about our achievements over the past year.

It is also a chance for you to have your say and raise any matters you think could further help people living with Parkinson's.

Venue: The Niche, 11 Aberdare Road, Nedlands. Please RSVP by 15 October via info@parkinsonswa.org.au - CLICK HERE to link to flyer.

Research Seminar 20 October 5pm before the AGM. CLICK HERE for details

A Walk In The Park - A Big thank you

This year, A Walk in the Park celebrated its 10th anniversary on 12 September. Together we support, celebrate and acknowledge those who walk tall with Parkinson's.

Thank you so much to everyone who participated, raised funds for us and volunteered on the day. We hope you had a great time and were inspired by the amazing community spirit. We had almost 800 participants and a hundred fur babies at the walk.

Your amazing support will go towards the delivery of essential services for the WA Parkinson's community, and we couldn't have done it without you.

Here are some photos from the event

https://www.davemorsephoto.com/#/walkinthepark/2021

We would also like to thank our sponsors for their generosity;

AbbVie, Absolute Balance, Affinity Systems, Aussie Spring Water, Constructive Media, Pfizer, Teva, Town of Cambridge, UCB.

Once again, thank you for being a part of A Walk in the Park and we look forward to walking with you again next year in 2022!

RESEARCH: Calling for Participants

Western Australian Centre for Health & Ageing (WACHA) are calling for individuals with either Dementia with Lewy Bodies (DLB) or Parkinson’s Disease Dementia (PDD) to participate in a study to better understand the changes that occur in the body and brain of people with DLB & PDD.
CLICK HERE for information about the study.

RESEARCH: Calling for Participants

Perron Institute’s TONiC (Trajectories of Outcomes in Neurological Conditions) researchers are now recruiting people with Parkinson’s to participate in this quality of life and genetic study. The objective of the study is to improve our understanding of how genetics can impact patient progression and quality of life, eventually helping researchers and clinicians improve patient care and therapies.

CLICK HERE for information about the study.

CLICK HERE to register your interest in this study.

Who cares for the carer? Co-designing a novel service to support health and wellbeing of older carers of older people

 Give your opinion on older carers’ needs relating to carer health, wellbeing, health promotion, support service use and needs

We are seeking older carers (aged 50 years and above) who care for older people (aged 65 years or above) to complete a survey

 Why should I take part in this study?

Your opinion will help us:

  • Better understand the information and support sources used by older carers of older people to manage their health, wellbeing and caring needs.
  • Co-design a new service to support health and wellbeing of older carers of older people in Australia.

What will it involve?

  • Complete a 30 minute (approx.) online survey
  • Submit the survey on-line

Where can I get the survey?

Please click on the online survey link https://bit.ly/3fa3pJf to complete the survey

An explanatory statement (provides more information on this research) can be sent to your email address by contacting Dr Moira Watson.

If you prefer to complete a paper-based survey, a paper-based survey, an explanatory statement and a reply paid envelope will be posted to you.

For further information:

Dr Moira Watson, Murdoch University, Phone: 08 9360 6217, Email: moira.watson@murdoch.edu.au

Funded by:National Centre for Healthy Ageing, Monash University

WHAT IS THE EXPERIENCE OF SLEEP FOR THE PARTNERS OF THOSE LIVING WITH PARKINSON'S?

Does your partner have Parkinson's?

Have you lived with your partner for at least one year?

Do you have experiences around sleep you would like to share?

Researchers are looking to gain an understanding of the lived experience around sleep for the partners of those with Parkinson's.

The aim of the research is to contribute to the work in understanding the issues for people with Parkinson's and their partners, learn strategies people may use to manage their sleep, and share that information.

Participation is voluntary and will consist of a 45-60 minute interview.
If you are interested in participating or would like further information, please contact: Lea Budgen
(Primary Researcher/Honours Student in Occupational Therapy)
lbudgen@our.ecu.edu.au / 0406 506 669

 

 

Control & Mood in People with Parkinson's

Researchers at the University of East Anglia (UK) are looking for participants to take part in a research project on how feelings of control and mood in people with Parkinson’s may affect taking medication.

This study is closing in only 10 days, so please consider completing this quick survey:

Click here for survey

 

Research Call for Participants

University of SA are looking for individuals under the age of 65 with Parkinson's to take part in a community participatory project. With an aim to further enhance resources and education for people living with Young Onset Parkinson's in the community, researchers need volunteers to assist with their work and findings.

Please click HERE   for more information. 

 

Consumer and Community Involvement Program


Researchers are inviting 12 people, or their carers with a lived experience of being admitted to and discharged from a hospital in Western Australia, to assist them to create scenarios for a new healthcare training simulator for students and staff.
They are particularly interested in talking with people and carers with lived experiences of traumatic brain injury (also called ‘head injury’), Parkinson’s disease, stroke and chronic obstructive pulmonary disease (COPD).

read more

Participants invited for Parkinson's Research

Researchers at Curtin University are currently investigating the social and communicative abilities of people with Parkinson's. Research indicates that some people with Parkinson's may experience difficulties with some aspects of communication.
read more

Heat Sensitivity Study

The Parkinson’s condition may present with non-movement symptoms, including the way the body responds to changes in temperature. However, many aspects of how people with Parkinson’s disease experience the heat, such as their perceptions of heat, its effects on day-to-day activities and quality of life, and whether they experience symptoms of heat-related illness, are not well understood.

 

 

read more

Support the Parkinson's Community

Researchers are inviting 12 people, or their carers with a lived experience of being admitted to and discharged from a hospital in Western Australia, to assist them to create scenarios for a new healthcare training simulator for students and staff.
They are particularly interested in talking with people and carers with lived experiences of traumatic brain injury (also called ‘head injury’), Parkinson’s disease, stroke and chronic obstructive pulmonary disease (COPD).
Find out more: cciprogram.org
To apply: https://bit.ly/PharmSim
Applications Close: Friday March 5
Curtin University Parkinson's Western Australia Synapse - Australia's Brain Injury Organisation Carers WA Fight Stroke Australia Stroke Foundation of Western Australia Lung Foundation Australia
#BrainInjury #brainhealth #traumaticbraininjury #traumaticbraininjuryawareness #headinjuries

Sleep issues for People with Young Onset Parkinson's (Under 65)

On behalf of the Parkinson’s community, Parkinson’s Australia is seeking feedback for the development of an App. One of the issues identified during consultations for this Young Onset Parkinson’s Exchange (YOP-X) Project, is around sleep and fatigue.

The idea is that the App could assist people with Young Onset Parkinson’s to improve their journey with Parkinson’s.  The idea is that the App could assist with Young Onset Parkinson’s to improve their sleep and maximise energy.

While studies have shown that sleep issues are one of the most frequent non-motor symptoms of Parkinson’s, greater understanding is needed around how sleep issues present in younger people with Parkinson’s.

The questions accessed via the following link are there to act as a prompt, with a space for any additional contributions. The short survey is also completely anonymous.

Please click here to participate: TAKE SURVEY HERE

Your contribution to Parkinson’s research is greatly appreciated.