Parkinson’s WA | Supporting the Western Australian Community

LATEST ADVICE FOLLOWING LOCK-DOWN

The Parkinson's WA office is now open.

As from week commencing 5th July, 2021, in accordance with government guidelines, the Parkinson's Nurse Specialist Service will return to normal services.

Rock To Rock Fundraising Campaign

PLEASE DONATE TO ROCK TO ROCK FUNDRAISER HERE

Re-enacting the wartime journey of convoys in their defence of Australia, Geraldton resident John Marriott will spearhead an epic fundraising campaign, travelling from his home-town in WA across the border to Uluru, some 3,000 kms distance to fundraise for Parkinson’s WA.

In order to commemorate the sacrifice made by our war veterans, John and other Geraldton residents (all of whom are diagnosed with Parkinson’s,) have revived a number of abandoned WWII military vehicles, planning to depart Geraldton on July 9 to make their way to Mt Augustus, Wiluna and Glenayle before completing their journey at Uluru on July 25.

Commencing this campaign two years ago by salvaging the military vehicles, the team’s efforts were scuppered when COVID-19 took hold, however, their plans are back on track and they are now casting the net wide for support.

Anyone who would like to join them on this journey are welcomed, as drivers, service mechanics or simply to enjoy the experience of taking this epic journey for a good cause. All fees ($1000 per vehicle) on the Rock to Rock fundraising campaign will be donated to Parkinson’s WA and contribute to the valuable Parkinson’s Nurse Specialist Service.

PLEASE CLICK ON BUTTON ABOVE IF YOU WOULD LIKE TO DONATE or call the Parkinson's WA office on 6457 7373.

Please consider donating to our Tax Appeal

To the Parkinson's WA community, we ask if you are able to support the Parkinson's Nurse Specialist service by donating to our Mid Year Appeal. Your tax deductible gift will contribute directly to the continuation of this essential service which is relied on by thousands of West Australians.

Everyone who lives with Parkinson's deserves to continue to have a good quality of life and have access to additional care. We are proud of our service in the Parkinson's WA community but this cannot be done without the support of donors like yourself.

To donate, or for more information, please click HERE

Once again, thank you for your ongoing support.

Control & Mood in People with Parkinson's

Researchers at the University of East Anglia (UK) are looking for participants to take part in a research project on how feelings of control and mood in people with Parkinson’s may affect taking medication.

This study is closing in only 10 days, so please consider completing this quick survey:

Click here for survey

COVID-19 VACCINE FOR PEOPLE WITH PARKINSON’S

As part of the Federal government roll out of the national Covid-19 vaccination programme we have been notified that people with Parkinson’s are included in Phase 1b. This phase will commence nationally from March 22^nd 2021.

For further details, please visit Department of Health website HERE https://www.health.gov.au/initiatives-and-programs/covid-19-vaccines)

or telephone 1800 020 080 to assess your eligibility and be directed to centres close to you.

Covid -19 vaccine in not a live vaccine, therefore there should be no concerns about interactions with Parkinson’s related medications.

Insight Conference - Brave New World

An online platform like nothing else, take advantage of hearing and learning from Parkinson’s specialists and experts as well as others with Parkinson’s from the comfort of your own home. Insight 2021 Brave New World offers an opportunity for people with Parkinson’s, as well as their loved ones to listen and engage with a number of varied presentations, re-visit them in their own time and join in on the conversation.

The world’s largest annual online event on Parkinson’s specifically tailored to those with Parkinson’s and their loved ones, this an annual event offers FREE attendance for first month of access. Visit here: https://www.insightintopd.com/ to learn more and register your interest.

Visit our Events page to read about speakers involved:HERE

Research Call for Participants

University of SA are looking for individuals under the age of 65 with Parkinson's to take part in a community participatory project. With an aim to further enhance resources and education for people living with Young Onset Parkinson's in the community, researchers need volunteers to assist with their work and findings.

Please click HERE for more information.

Update on WA lockdown

In keeping with the Government directive, Parkinson’s WA is changing our practice until further notice:

The PWA office at The Niche is open to the public.
When you visit the Niche, you must complete the check-in register.
The Parkinson’s Nurse Specialists are resuming home visits. However, they will be in touch with you before the visit to confirm this is satisfactory to you.
Please be aware that any call from our office or any of the nurses will show up as a ‘private number’. This is unavoidable.
In keeping with government advice, the Parkinson’s Nurse Specialists are unable to visit any aged care facilities at present.

Please remember these changes are to protect our Western Australian community

Consumer and Community Involvement Program

Participants invited for Parkinson's Research

Researchers at Curtin University are currently investigating the social and communicative abilities of people with Parkinson's. Research indicates that some people with Parkinson's may experience difficulties with some aspects of communication.

Heat Sensitivity Study

The Parkinson’s condition may present with non-movement symptoms, including the way the body responds to changes in temperature. However, many aspects of how people with Parkinson’s disease experience the heat, such as their perceptions of heat, its effects on day-to-day activities and quality of life, and whether they experience symptoms of heat-related illness, are not well understood.

Support the Parkinson's Community

Researchers are inviting 12 people, or their carers with a lived experience of being admitted to and discharged from a hospital in Western Australia, to assist them to create scenarios for a new healthcare training simulator for students and staff.
They are particularly interested in talking with people and carers with lived experiences of traumatic brain injury (also called ‘head injury’), Parkinson’s disease, stroke and chronic obstructive pulmonary disease (COPD).
Find out more: cciprogram.org
To apply: https://bit.ly/PharmSim
Applications Close: Friday March 5
Curtin University Parkinson's Western Australia Synapse - Australia's Brain Injury Organisation Carers WA Fight Stroke Australia Stroke Foundation of Western Australia Lung Foundation Australia
#BrainInjury #brainhealth #traumaticbraininjury #traumaticbraininjuryawareness #headinjuries

Sleep issues for People with Young Onset Parkinson's (Under 65)

On behalf of the Parkinson’s community, Parkinson’s Australia is seeking feedback for the development of an App. One of the issues identified during consultations for this Young Onset Parkinson’s Exchange (YOP-X) Project, is around sleep and fatigue.

The idea is that the App could assist people with Young Onset Parkinson’s to improve their journey with Parkinson’s. The idea is that the App could assist with Young Onset Parkinson’s to improve their sleep and maximise energy.

While studies have shown that sleep issues are one of the most frequent non-motor symptoms of Parkinson’s, greater understanding is needed around how sleep issues present in younger people with Parkinson’s.

The questions accessed via the following link are there to act as a prompt, with a space for any additional contributions. The short survey is also completely anonymous.

Please click here to participate: TAKE SURVEY HERE

Your contribution to Parkinson’s research is greatly appreciated.