Parkinson’s WA | Supporting the Western Australian Community

A Walk In The Park!

Put your best foot forward and join in the fun on September 12, at Perry Lakes Reserve, Floreat, in what promises to be an amazing family-friendly atmosphere in a beautiful setting!

Choose to walk either 2km or 5km, helping to raise essential funds for the Parkinson's Nurse Specialist Service.

There will be a variety of food on offer with a petting zoo, alpacas and even a 'Best Dressed Pooch' contest with every dog registered receiving a free bandana.

Gates open at 9.30am with the walk commencing at 11.00am. To take part in this fantastic event and support the Parkinson's WA community, please register at: https://2021awitp.raisely.com

RESEARCH: Calling for Participants

Western Australian Centre for Health & Ageing (WACHA) are calling for individuals with either Dementia with Lewy Bodies (DLB) or Parkinson’s Disease Dementia (PDD) to participate in a study to better understand the changes that occur in the body and brain of people with DLB & PDD.

CLICK HERE for information about the study.

RESEARCH: Calling for Participants

Perron Institute’s TONiC (Trajectories of Outcomes in Neurological Conditions) researchers are now recruiting people with Parkinson’s to participate in this quality of life and genetic study. The objective of the study is to improve our understanding of how genetics can impact patient progression and quality of life, eventually helping researchers and clinicians improve patient care and therapies.

CLICK HERE for information about the study.

CLICK HERE to register your interest in this study.

Who cares for the carer? Co-designing a novel service to support health and wellbeing of older carers of older people

Give your opinion on older carers’ needs relating to carer health, wellbeing, health promotion, support service use and needs

We are seeking older carers (aged 50 years and above) who care for older people (aged 65 years or above) to complete a survey

Why should I take part in this study?

Your opinion will help us:

Better understand the information and support sources used by older carers of older people to manage their health, wellbeing and caring needs.
Co-design a new service to support health and wellbeing of older carers of older people in Australia.

What will it involve?

Complete a 30 minute (approx.) online survey
Submit the survey on-line

Where can I get the survey?

Please click on the online survey link https://bit.ly/3fa3pJf to complete the survey

An explanatory statement (provides more information on this research) can be sent to your email address by contacting Dr Moira Watson.

If you prefer to complete a paper-based survey, a paper-based survey, an explanatory statement and a reply paid envelope will be posted to you.

For further information:

Dr Moira Watson, Murdoch University, Phone: 08 9360 6217, Email: moira.watson@murdoch.edu.au

Funded by:National Centre for Healthy Ageing, Monash University

WHAT IS THE EXPERIENCE OF SLEEP FOR THE PARTNERS OF THOSE LIVING WITH PARKINSON'S?

Does your partner have Parkinson's?

Have you lived with your partner for at least one year?

Do you have experiences around sleep you would like to share?

Researchers are looking to gain an understanding of the lived experience around sleep for the partners of those with Parkinson's.

The aim of the research is to contribute to the work in understanding the issues for people with Parkinson's and their partners, learn strategies people may use to manage their sleep, and share that information.

Participation is voluntary and will consist of a 45-60 minute interview.
If you are interested in participating or would like further information, please contact: Lea Budgen
(Primary Researcher/Honours Student in Occupational Therapy)
lbudgen@our.ecu.edu.au / 0406 506 669

Rock To Rock Fundraising Campaign

PLEASE DONATE TO ROCK TO ROCK FUNDRAISER HERE

Re-enacting the wartime journey of convoys in their defence of Australia, Geraldton resident John Marriott will spearhead an epic fundraising campaign, travelling from his home-town in WA across the border to Uluru, some 3,000 kms distance to fundraise for Parkinson’s WA.

In order to commemorate the sacrifice made by our war veterans, John and other Geraldton residents (all of whom are diagnosed with Parkinson’s,) have revived a number of abandoned WWII military vehicles, planning to depart Geraldton on July 9 to make their way to Mt Augustus, Wiluna and Glenayle before completing their journey at Uluru on July 25.

Commencing this campaign two years ago by salvaging the military vehicles, the team’s efforts were scuppered when COVID-19 took hold, however, their plans are back on track and they are now casting the net wide for support.

Anyone who would like to join them on this journey are welcomed, as drivers, service mechanics or simply to enjoy the experience of taking this epic journey for a good cause. All fees ($1000 per vehicle) on the Rock to Rock fundraising campaign will be donated to Parkinson’s WA and contribute to the valuable Parkinson’s Nurse Specialist Service.

PLEASE CLICK ON BUTTON ABOVE IF YOU WOULD LIKE TO DONATE or call the Parkinson's WA office on 6457 7373.

Control & Mood in People with Parkinson's

Researchers at the University of East Anglia (UK) are looking for participants to take part in a research project on how feelings of control and mood in people with Parkinson’s may affect taking medication.

This study is closing in only 10 days, so please consider completing this quick survey:

Click here for survey

COVID-19 VACCINE FOR PEOPLE WITH PARKINSON’S

As part of the Federal government roll out of the national Covid-19 vaccination programme we have been notified that people with Parkinson’s are included in Phase 1b. This phase will commence nationally from March 22^nd 2021.

For further details, please visit Department of Health website HERE https://www.health.gov.au/initiatives-and-programs/covid-19-vaccines)

or telephone 1800 020 080 to assess your eligibility and be directed to centres close to you.

Covid -19 vaccine in not a live vaccine, therefore there should be no concerns about interactions with Parkinson’s related medications.

Insight Conference - Brave New World

An online platform like nothing else, take advantage of hearing and learning from Parkinson’s specialists and experts as well as others with Parkinson’s from the comfort of your own home. Insight 2021 Brave New World offers an opportunity for people with Parkinson’s, as well as their loved ones to listen and engage with a number of varied presentations, re-visit them in their own time and join in on the conversation.

The world’s largest annual online event on Parkinson’s specifically tailored to those with Parkinson’s and their loved ones, this an annual event offers FREE attendance for first month of access. Visit here: https://www.insightintopd.com/ to learn more and register your interest.

Visit our Events page to read about speakers involved:HERE

Research Call for Participants

University of SA are looking for individuals under the age of 65 with Parkinson's to take part in a community participatory project. With an aim to further enhance resources and education for people living with Young Onset Parkinson's in the community, researchers need volunteers to assist with their work and findings.

Please click HERE for more information.

Consumer and Community Involvement Program

Participants invited for Parkinson's Research

Researchers at Curtin University are currently investigating the social and communicative abilities of people with Parkinson's. Research indicates that some people with Parkinson's may experience difficulties with some aspects of communication.

Heat Sensitivity Study

The Parkinson’s condition may present with non-movement symptoms, including the way the body responds to changes in temperature. However, many aspects of how people with Parkinson’s disease experience the heat, such as their perceptions of heat, its effects on day-to-day activities and quality of life, and whether they experience symptoms of heat-related illness, are not well understood.

Support the Parkinson's Community

Researchers are inviting 12 people, or their carers with a lived experience of being admitted to and discharged from a hospital in Western Australia, to assist them to create scenarios for a new healthcare training simulator for students and staff.
They are particularly interested in talking with people and carers with lived experiences of traumatic brain injury (also called ‘head injury’), Parkinson’s disease, stroke and chronic obstructive pulmonary disease (COPD).
Find out more: cciprogram.org
To apply: https://bit.ly/PharmSim
Applications Close: Friday March 5
Curtin University Parkinson's Western Australia Synapse - Australia's Brain Injury Organisation Carers WA Fight Stroke Australia Stroke Foundation of Western Australia Lung Foundation Australia
#BrainInjury #brainhealth #traumaticbraininjury #traumaticbraininjuryawareness #headinjuries

Sleep issues for People with Young Onset Parkinson's (Under 65)

On behalf of the Parkinson’s community, Parkinson’s Australia is seeking feedback for the development of an App. One of the issues identified during consultations for this Young Onset Parkinson’s Exchange (YOP-X) Project, is around sleep and fatigue.

The idea is that the App could assist people with Young Onset Parkinson’s to improve their journey with Parkinson’s. The idea is that the App could assist with Young Onset Parkinson’s to improve their sleep and maximise energy.

While studies have shown that sleep issues are one of the most frequent non-motor symptoms of Parkinson’s, greater understanding is needed around how sleep issues present in younger people with Parkinson’s.

The questions accessed via the following link are there to act as a prompt, with a space for any additional contributions. The short survey is also completely anonymous.

Please click here to participate: TAKE SURVEY HERE

Your contribution to Parkinson’s research is greatly appreciated.