International Nurses Day 12 May

May 12th is the day nominated to acknowledge the role nurses play in our community and health systems globally. This date is the anniversary of the birth of Florence Nightingale who is remembered for her passion and scientific approach to nursing during The Crimean War.

Nursing has progressed since that time and is now central to so many conditions and diagnosis. Parkinson’s WA is proud to have an expert team of eight nurses who are dedicated to the care and support of people living with Parkinson’s in WA covering the metropolitan area and the South West region.

In the words of Florence Nightingale ‘Nursing is an Art’ and we consider our team as being fully competent and creative in their approach to the huge challenges which Parkinson’s brings to all it affects both patients and Nurses.

From the Nurse's Desks - Parkinson's Nurse Specialist Visits 

With the recent Government lifting of Covid-19 restrictions we are pleased to announce that as from Monday May 9th we are returning to face- to- face home visiting. This, of course, will be only if you the person being visited is comfortable with having us visit your home. If you decide that you would prefer to avoid a face-to-face visit the Parkinson’s Nurse Specialist will arrange a HealthDirect consultation using your phone or laptop.

You will receive a phone call on the morning of your booked home visit to check that you are well and symptom free.

As Health Professionals, we will be:

  • Carrying out RAT testing before the start of our working week and as necessary during the week
  • Wearing masks throughout our visits.
  • Be mindful of maintaining a safe distance
  • Will adhere to all Government guidelines.

As we go to print and cases of Covid in the community are rising, we acknowledge that there may be last minute cancellations of visits due to sick leave. We ask that you are considerate of this. Above all  your safety and good health are our priority.

Janet McLeod
Clinical Nurse Manager

Parkinson's WA office

Due to the rising number of Covid-19 cases in Western Australia, the Parkinson’s WA office in Nedlands will be accepting visitors by appointment only. If you need to visit the office, give us a call on (08) 6457 7373 to arrange an appointment. We appreciate your understanding.

 

Date: 28/02/2022

Latest research on exercise and Parkinson's!

A recent study from a research team in Japan demonstrates the benefits of regular exercise on slowing the progression of Parkinson’s.

Researchers found that the participant’s level of physical activity at the start of the study was not associated with the progression of their Parkinson's later on. Rather, they discovered it was more important to maintain consistent levels of physical activity over time.

Participants who completed at least four hours of moderate to vigorous exercise per week showed a slower decline in balancing and walking five years later, in comparison with participants who rarely exercised.

"We found that regular physical activity, including household tasks and moderate exercise, may actually improve the course of the disease over the long run. Best of all, exercise is low cost and has few side effects," said study author Kazuto Tsukita, MD, of Kyoto University in Japan.

The research article has been published in Neurology and can be accessed here.

Fundraisers for Parkinson's WA

We have some exciting fundraisers for PWA on the horizon! Please click on the links below to read about Kate's and Karen's fundraisers. We appreciate your support.

Read Kate's story here

Read Karen's story here

Laser light therapy

We have received a significant amount of interest today from the Parkinson’s community regarding the Channel Seven report into laser light therapy. Many of you may have realised that the handheld laser therapy was the subject of a small study (only 12 people) last year in Adelaide, South Australia. This is now being extended and is underway at the University of Sydney. A very comprehensive overview is available here -

https://www.parkinsonsnsw.org.au/laser-light-therapy-human-trial/

Posted: 12 January 2022

Upcoming fundraising opportunities

Are you competing in the Rottnest Channel Swim or Port to Pub events?

Are you passionate about the work Parkinson's WA does to support the Parkinson's community in Western Australia?

Why not fundraise for us!

We would love to hear from you and help you achieve your fundraising goals. For more information please contact the Parkinson's WA team at fundraising@parkinsonswa.org.au.

Parkinson's WA Christmas Appeal

Diagnosed with Parkinson's 12 years ago at the age of 45, Raymond continues to inspire the Parkinson's community and is a fierce advocate for the work of Parkinson's WA.

As the Parkinson's WA Nurse Specialist Service is only partially funded by the Department of Health, we rely on donations from our community to ensure that we can continue supporting people living with Parkinson's in Western Australia.

Please take the time to read Raymond's story here.

 

read more

RESEARCH: Calling for Participants

Western Australian Centre for Health & Ageing (WACHA) are calling for individuals with either Dementia with Lewy Bodies (DLB) or Parkinson’s Disease Dementia (PDD) to participate in a study to better understand the changes that occur in the body and brain of people with DLB & PDD.
CLICK HERE for information about the study.

RESEARCH: Calling for Participants

Perron Institute’s TONiC (Trajectories of Outcomes in Neurological Conditions) researchers are now recruiting people with Parkinson’s to participate in this quality of life and genetic study. The objective of the study is to improve our understanding of how genetics can impact patient progression and quality of life, eventually helping researchers and clinicians improve patient care and therapies.

CLICK HERE for information about the study.

CLICK HERE to register your interest in this study.

Who cares for the carer? Co-designing a novel service to support health and wellbeing of older carers of older people

 Give your opinion on older carers’ needs relating to carer health, wellbeing, health promotion, support service use and needs

We are seeking older carers (aged 50 years and above) who care for older people (aged 65 years or above) to complete a survey

 Why should I take part in this study?

Your opinion will help us:

  • Better understand the information and support sources used by older carers of older people to manage their health, wellbeing and caring needs.
  • Co-design a new service to support health and wellbeing of older carers of older people in Australia.

What will it involve?

  • Complete a 30 minute (approx.) online survey
  • Submit the survey on-line

Where can I get the survey?

Please click on the online survey link https://bit.ly/3fa3pJf to complete the survey

An explanatory statement (provides more information on this research) can be sent to your email address by contacting Dr Moira Watson.

If you prefer to complete a paper-based survey, a paper-based survey, an explanatory statement and a reply paid envelope will be posted to you.

For further information:

Dr Moira Watson, Murdoch University, Phone: 08 9360 6217, Email: moira.watson@murdoch.edu.au

Funded by:National Centre for Healthy Ageing, Monash University

Control & Mood in People with Parkinson's

Researchers at the University of East Anglia (UK) are looking for participants to take part in a research project on how feelings of control and mood in people with Parkinson’s may affect taking medication.

This study is closing in only 10 days, so please consider completing this quick survey:

Click here for survey

 

Research Call for Participants

University of SA are looking for individuals under the age of 65 with Parkinson's to take part in a community participatory project. With an aim to further enhance resources and education for people living with Young Onset Parkinson's in the community, researchers need volunteers to assist with their work and findings.

Please click HERE   for more information. 

 

Consumer and Community Involvement Program


Researchers are inviting 12 people, or their carers with a lived experience of being admitted to and discharged from a hospital in Western Australia, to assist them to create scenarios for a new healthcare training simulator for students and staff.
They are particularly interested in talking with people and carers with lived experiences of traumatic brain injury (also called ‘head injury’), Parkinson’s disease, stroke and chronic obstructive pulmonary disease (COPD).

read more

Participants invited for Parkinson's Research

Researchers at Curtin University are currently investigating the social and communicative abilities of people with Parkinson's. Research indicates that some people with Parkinson's may experience difficulties with some aspects of communication.
read more

Heat Sensitivity Study

The Parkinson’s condition may present with non-movement symptoms, including the way the body responds to changes in temperature. However, many aspects of how people with Parkinson’s disease experience the heat, such as their perceptions of heat, its effects on day-to-day activities and quality of life, and whether they experience symptoms of heat-related illness, are not well understood.

 

 

read more

Support the Parkinson's Community

Researchers are inviting 12 people, or their carers with a lived experience of being admitted to and discharged from a hospital in Western Australia, to assist them to create scenarios for a new healthcare training simulator for students and staff.
They are particularly interested in talking with people and carers with lived experiences of traumatic brain injury (also called ‘head injury’), Parkinson’s disease, stroke and chronic obstructive pulmonary disease (COPD).
Find out more: cciprogram.org
To apply: https://bit.ly/PharmSim
Applications Close: Friday March 5
Curtin University Parkinson's Western Australia Synapse - Australia's Brain Injury Organisation Carers WA Fight Stroke Australia Stroke Foundation of Western Australia Lung Foundation Australia
#BrainInjury #brainhealth #traumaticbraininjury #traumaticbraininjuryawareness #headinjuries

Sleep issues for People with Young Onset Parkinson's (Under 65)

On behalf of the Parkinson’s community, Parkinson’s Australia is seeking feedback for the development of an App. One of the issues identified during consultations for this Young Onset Parkinson’s Exchange (YOP-X) Project, is around sleep and fatigue.

The idea is that the App could assist people with Young Onset Parkinson’s to improve their journey with Parkinson’s.  The idea is that the App could assist with Young Onset Parkinson’s to improve their sleep and maximise energy.

While studies have shown that sleep issues are one of the most frequent non-motor symptoms of Parkinson’s, greater understanding is needed around how sleep issues present in younger people with Parkinson’s.

The questions accessed via the following link are there to act as a prompt, with a space for any additional contributions. The short survey is also completely anonymous.

Please click here to participate: TAKE SURVEY HERE

Your contribution to Parkinson’s research is greatly appreciated.