International Nurses Day

Today is International Nurses Day, a day we celebrate the amazing work and dedication of all nurses around the globe. Celebrated annually on May 12, this day commemorates the birth of the world's most famous nurse, Florence Nightingale.

At Parkinson's WA, we are very grateful for all the work and care our nurses provide within our Parkinson's community and are proud we are able to continue to provide the extremely valuable Parkinson's Nurse Specialist Service.

Do you have Young Onset Parkinson’s?

Do you know someone who does? Here’s a world-first app and website developed by Parkinson’s Australia to help people with YOP live the best possible life. Download and explore these life-changing resources here today :   www.youngonsetparkinsons.org.au

 

Control & Mood in People with Parkinson's

Researchers at the University of East Anglia (UK) are looking for participants to take part in a research project on how feelings of control and mood in people with Parkinson’s may affect taking medication.

They are hoping this will help make taking medications easier for people with Parkinson’s.

Please consider completing this quick survey: http://bit.ly/parkinsons-adherence

 

COVID-19 VACCINE FOR PEOPLE WITH PARKINSON’S

As part of the Federal government roll out of the national Covid-19 vaccination programme we have been notified that people with Parkinson’s are included in Phase 1b. This phase will commence nationally from March 22nd 2021.

For further details, please visit Department of Health website (https://www.health.gov.au/initiatives-and-programs/covid-19-vaccines)

or telephone 1800 020 080  to assess your eligibility and be directed to centres close to you.

Covid -19 vaccine in not a live vaccine, therefore there should be no concerns about interactions with Parkinson’s related medications.

Insight Conference - Brave New World

An online platform like nothing else, take advantage of hearing and learning from Parkinson’s specialists and experts as well as others with Parkinson’s from the comfort of your own home. Insight 2021 Brave New World offers an opportunity for people with Parkinson’s, as well as their loved ones to listen and engage with a number of varied presentations, re-visit them in their own time and join in on the conversation.

The world’s largest annual online event on Parkinson’s specifically tailored to those with Parkinson’s and their loved ones, this an annual event offers FREE attendance for first month of access.  Visit here: https://www.insightintopd.com/ to learn more and register your interest.

Visit our Events page to read about speakers involved:HERE 

Research Call for Participants

University of SA are looking for individuals under the age of 65 with Parkinson's to take part in a community participatory project. With an aim to further enhance resources and education for people living with Young Onset Parkinson's in the community, researchers need volunteers to assist with their work and findings.

Please click HERE   for more information. 

Update on WA lockdown

In keeping with the Government directive, Parkinson’s WA is changing our practice until further notice:

  • The PWA office at The Niche is open to the public.
  • When you visit the Niche, you must complete the check-in register.
  • The Parkinson’s Nurse Specialists are resuming home visits. However, they will be in touch with you before the visit to confirm this is satisfactory to you.
  • Please be aware that any call from our office or any of the nurses will show up as a ‘private number’. This is unavoidable.
  • In keeping with government advice, the Parkinson’s Nurse Specialists are unable to visit any aged care facilities at present.

Please remember these changes are to protect our Western Australian community

 

Containers for Change

Like the idea of recycling AND donating money to a worthy cause at the same time?

Containers for Change allow that to happen. When you recycle with Containers for Change, you get a 10 cent refund for every eligible container you return. They also provide opportunities for groups and individuals to champion recycling and raise funds for worthy causes.

If you would like to donate your Containers for Change refund to Parkinson’s WA please quote our scheme ID: C10329740 at your
local Refund Point.

To find out more about the scheme and how it works, please visit https://www.containersforchange.com.au/wa/

Consumer and Community Involvement Program


Researchers are inviting 12 people, or their carers with a lived experience of being admitted to and discharged from a hospital in Western Australia, to assist them to create scenarios for a new healthcare training simulator for students and staff.
They are particularly interested in talking with people and carers with lived experiences of traumatic brain injury (also called ‘head injury’), Parkinson’s disease, stroke and chronic obstructive pulmonary disease (COPD).

read more

Participants invited for Parkinson's Research

Researchers at Curtin University are currently investigating the social and communicative abilities of people with Parkinson's. Research indicates that some people with Parkinson's may experience difficulties with some aspects of communication.
read more

Heat Sensitivity Study

The Parkinson’s condition may present with non-movement symptoms, including the way the body responds to changes in temperature. However, many aspects of how people with Parkinson’s disease experience the heat, such as their perceptions of heat, its effects on day-to-day activities and quality of life, and whether they experience symptoms of heat-related illness, are not well understood.

 

 

read more

Support the Parkinson's Community

Researchers are inviting 12 people, or their carers with a lived experience of being admitted to and discharged from a hospital in Western Australia, to assist them to create scenarios for a new healthcare training simulator for students and staff.
They are particularly interested in talking with people and carers with lived experiences of traumatic brain injury (also called ‘head injury’), Parkinson’s disease, stroke and chronic obstructive pulmonary disease (COPD).
Find out more: cciprogram.org
To apply: https://bit.ly/PharmSim
Applications Close: Friday March 5
Curtin University Parkinson's Western Australia Synapse - Australia's Brain Injury Organisation Carers WA Fight Stroke Australia Stroke Foundation of Western Australia Lung Foundation Australia
#BrainInjury #brainhealth #traumaticbraininjury #traumaticbraininjuryawareness #headinjuries

Sleep issues for People with Young Onset Parkinson's (Under 65)

On behalf of the Parkinson’s community, Parkinson’s Australia is seeking feedback for the development of an App. One of the issues identified during consultations for this Young Onset Parkinson’s Exchange (YOP-X) Project, is around sleep and fatigue.

The idea is that the App could assist people with Young Onset Parkinson’s to improve their journey with Parkinson’s.  The idea is that the App could assist with Young Onset Parkinson’s to improve their sleep and maximise energy.

While studies have shown that sleep issues are one of the most frequent non-motor symptoms of Parkinson’s, greater understanding is needed around how sleep issues present in younger people with Parkinson’s.

The questions accessed via the following link are there to act as a prompt, with a space for any additional contributions. The short survey is also completely anonymous.

Please click here to participate: TAKE SURVEY HERE

Your contribution to Parkinson’s research is greatly appreciated.