Parkinson’s WA | Supporting the Western Australian Community

Research Call for Participants

University of SA are looking for individuals under the age of 65 with Parkinson's to take part in a community participatory project. With an aim to further enhance resources and education for people living with Young Onset Parkinson's in the community, researchers need volunteers to assist with their work and findings.

Please click HERE for more information.

Update on WA lockdown

In keeping with the Government directive, Parkinson’s WA is changing our practice until further notice:

The PWA office at The Niche is open to the public.
When you visit the Niche, you must complete the check-in register.
The Parkinson’s Nurse Specialists are resuming home visits. However, they will be in touch with you before the visit to confirm this is satisfactory to you.
Please be aware that any call from our office or any of the nurses will show up as a ‘private number’. This is unavoidable.
In keeping with government advice, the Parkinson’s Nurse Specialists are unable to visit any aged care facilities at present.

Please remember these changes are to protect our Western Australian community

Consumer and Community Involvement Program

Researchers are inviting 12 people, or their carers with a lived experience of being admitted to and discharged from a hospital in Western Australia, to assist them to create scenarios for a new healthcare training simulator for students and staff.
They are particularly interested in talking with people and carers with lived experiences of traumatic brain injury (also called ‘head injury’), Parkinson’s disease, stroke and chronic obstructive pulmonary disease (COPD).
Find out more: cciprogram.org
To apply: https://bit.ly/PharmSim
Applications Close: Friday March 5
Curtin University Parkinson's Western Australia Synapse - Australia's Brain Injury Organisation Carers WA Fight Stroke Australia Stroke Foundation of Western Australia Lung Foundation Australia
#BrainInjury #brainhealth #traumaticbraininjury #traumaticbraininjuryawareness #headinjuries

Participants invited for Parkinson's Research

Researchers at Curtin University are currently investigating the social and communicative abilities of people with Parkinson's. Research indicates that some people with Parkinson's may experience difficulties with some aspects of communication.

This research seeks to examine the type and extent of communication difficulties that people with Parkinson's might experience. This may help to better understand social and communicative abilities in Parkinson’s and contribute to the development of interventions and support.

For more information about the research, please call 0401-630-047

Call for participants in Research Study

Parkinson’s disease may present with non-movement symptoms, including the way the body responds to changes in temperature. However, many aspects of how people with Parkinson’s disease experience the heat, such as their perceptions of heat, its effects on day-to-day activities and quality of life, and whether they experience symptoms of heat-related illness, are not well understood.

There are two aims for this study:

To increase knowledge and understanding of how people with Parkinson’s disease experience the heat.
To develop a scale for the assessment of heat sensitivity in people with Parkinson’s disease.

These findings will help to shed light on the experience of heat sensitivity in people with Parkinson’s disease and provide a tool for clinicians and researchers to assess heat sensitivity in people with Parkinson’s disease.

If you have been diagnosed with Parkinson’s, you are invited to participate in this research project.

If you are interested in participating in this study, please follow this link to the study site:

https://survey.qut.edu.au/f/193936/87f4/

Alternatively, for details of the next step, please contact:

Dr Andrew Hunt ap.hunt@qut.edu.au

Prof Ian Stewart i.stewart@qut.edu.au +61 7 3138 6118

Prof Graham Kerr g.kerr@qut.edu.au +61 7 3138 6303

Thank-you to our Nurses

Parkinson's WA celebrates 23 years of its Parkinson's' Nurse Specialist Service. Covering both metropolitan and regional areas, the service has educated, supported and cared for those with Parkinson's for over two decades. Their invaluable service ensures people with Parkinson's, their families and caregivers are provided with expert nursing advice, knowledge, and assistance managing the condition. Thank-you to our fabulous and dedicated nurses and all the work that you do! To view photos of our nurses over the past 23 years, visit our Nurse Specialist page.

Support the Parkinson's Community

Sleep issues for People with Young Onset Parkinson's (Under 65)

On behalf of the Parkinson’s community, Parkinson’s Australia is seeking feedback for the development of an App. One of the issues identified during consultations for this Young Onset Parkinson’s Exchange (YOP-X) Project, is around sleep and fatigue.

The idea is that the App could assist people with Young Onset Parkinson’s to improve their journey with Parkinson’s. The idea is that the App could assist with Young Onset Parkinson’s to improve their sleep and maximise energy.

While studies have shown that sleep issues are one of the most frequent non-motor symptoms of Parkinson’s, greater understanding is needed around how sleep issues present in younger people with Parkinson’s.

The questions accessed via the following link are there to act as a prompt, with a space for any additional contributions. The short survey is also completely anonymous.

Please click here to participate: TAKE SURVEY HERE

Your contribution to Parkinson’s research is greatly appreciated.